﻿WEBVTT

00:00:00.542 --> 00:00:01.793
So before CRENESSITY,

00:00:01.793 --> 00:00:04.462
I was constantly going back and forth

00:00:04.462 --> 00:00:06.089
to my endocrinologist

00:00:06.089 --> 00:00:08.383
and it was really frustrating.

00:00:08.383 --> 00:00:11.261
It was always too much of something,

00:00:11.261 --> 00:00:12.679
too little of something else.

00:00:12.679 --> 00:00:16.057
Taking CRENESSITY has lowered my androgens

00:00:16.057 --> 00:00:18.143
and decreased the amount of steroids I'm taking.

00:00:20.270 --> 00:00:21.730
I've been on high dose steroids

00:00:21.730 --> 00:00:23.982
my whole life before I started CRENESSITY.

00:00:23.982 --> 00:00:25.650
It was really impacting my health.

00:00:25.650 --> 00:00:27.318
I got high blood pressure,

00:00:27.318 --> 00:00:29.237
type two diabetes,

00:00:29.237 --> 00:00:30.697
all the weight gain,

00:00:30.697 --> 00:00:33.825
and the mood changes with the high dose steroids.

00:00:33.825 --> 00:00:36.745
It was really hard on me and on my body.

00:00:36.745 --> 00:00:39.539
I’ve experienced the puffy face,

00:00:39.539 --> 00:00:41.332
sleepless nights,

00:00:41.332 --> 00:00:43.001
the hot flashes.

00:00:43.001 --> 00:00:46.171
When you're growing up, there’s always

00:00:46.171 --> 00:00:49.049
there's a stigma of looking a certain way,

00:00:49.049 --> 00:00:50.425
trying to maintain a weight.

00:00:50.425 --> 00:00:54.387
And it's like fighting one thing with the other.

00:00:54.387 --> 00:00:57.891
My endocrinologist didn't have much knowledge of [CAH],

00:00:57.891 --> 00:01:01.352
it’s a pretty rare medical condition.

00:01:01.352 --> 00:01:03.229
So I took it into my own hands

00:01:03.229 --> 00:01:06.566
to try to see if there were other options.

00:01:06.566 --> 00:01:08.109
I was researching online

00:01:08.109 --> 00:01:10.820
and I came across the CAHtalyst study.

00:01:10.820 --> 00:01:12.489
I was super excited because

00:01:12.489 --> 00:01:15.075
I hadn't heard anything other than

00:01:15.075 --> 00:01:18.578
what I have heard from my physician about CAH.

00:01:18.578 --> 00:01:19.829
So I’ve been on CRENESSITY

00:01:19.829 --> 00:01:22.540
almost three years, I believe.

00:01:22.540 --> 00:01:24.375
It's lowered my androgens

00:01:24.375 --> 00:01:27.128
and it’s helped me significantly

00:01:27.128 --> 00:01:29.047
reduce the amount of steroids I’m on.

00:01:29.047 --> 00:01:31.674
Now that I’m at a lower dose, I sleep a lot better.

00:01:31.674 --> 00:01:33.885
My doctor, she let me know that

00:01:33.885 --> 00:01:36.971
the most common side effects of CRENESSITY in adults include

00:01:36.971 --> 00:01:38.181
tiredness, headache,

00:01:38.181 --> 00:01:39.557
dizziness, joint pain,

00:01:39.557 --> 00:01:41.351
back pain, decreased appetite,

00:01:41.351 --> 00:01:42.268
and muscle pain.

00:01:42.268 --> 00:01:45.063
So before I started the CAHtalyst study,

00:01:45.063 --> 00:01:49.317
I hadn't had a menstrual cycle in about 15 years,

00:01:49.317 --> 00:01:50.902
so it’d been a long time.

00:01:50.902 --> 00:01:52.654
And being a woman

00:01:52.654 --> 00:01:54.572
and not having a menstrual cycle,

00:01:54.572 --> 00:01:59.160
it didn't make me feel normal in a sense.

00:01:59.661 --> 00:02:01.538
And once I started CRENESSITY,

00:02:01.538 --> 00:02:04.707
I was able to experience that again

00:02:04.707 --> 00:02:08.336
and it brought back a sense of femininity to me.

00:02:08.336 --> 00:02:10.839
It’s really given me a new outlook on life.